By Aromo Agnes
Every year about 12,000 to 16,000 children below five years die of sickle cell disease with districts of Gulu, Lira, Kitgum, Dokolo, Oyam, Tororo, Jinja and Kampala witnessing a high burden with a prevalence of 20% and a disease burden ranging between 1% to 5%.
Sickle cell Patients in Gulu district are facing many challenges these Corona Pandemic.
Concy Angee a resident of Awere Subcounty Pader District is a mother of two girls aged 9 and 12 years both from suffering from sickle cell says life is hard because she has to borrow money to support them.
“Last year I borrowed 5.5 million and planted cotton in the garden but because of always taking these two girls to hospital all my cotton got spoilt in the garden. I attempted suicide because I had no money for repaying my loan”. She said.
Venice Omona the Head Of Pediatrics Department Lacor Hospital is calling upon stakeholders to champion the fight against stigmatization. He noted many men are neglecting their wives.
Lacor Hospital and Gulu Regional Referral Hospital do not have the machine for diagnosing people suffering from sickle cells.
James Lowo the Director Nutrition African Agency says Over 80 percent of children in Uganda die as a result of with sickle cell diseases before reaching two years old.
According to him they have introduced Community Base Nutrition through which caretakers are taught on how to prepare nutritious food for children suffering from sickle cell.
Nutrition African Agency also looks at home gardening and geoponic in which caretakers raise fish and vegetable within homesteads using a pump to produce the major component like fish, vegetable microorganism to produce ammonia and the care taker they don’t have enough money for all that activity.
Northern Uganda have registered 1770 patient who are suffering from sickle cell diseases. End